Collection entity
Definition
For MIABIS Core 3.0 purpose, Collection represents a set of samples and/or data items collected and/or derived in a common context and stored under a common stewardship and available for future research.
The MIABIS v2 Sample Collection was renamed as Collection to make it more inclusive and generic, and to allow description of data collections in Core v3 by Eklund et al. 2024.
Attribute list
| Attribute Code | Attribute Name | Description | Data Type | Allowed Values | Constraints | Cardinality |
|---|---|---|---|---|---|---|
| MIABIS-COLLECTION-01 | ID | ID of the collection. | Text | The ID is technical and given by the implementation. Implementation will provide instructions on how to form the ID. | 1 | |
| MIABIS-COLLECTION-02 | Acronym | Short name in use for the collection. If applicable. | Text | 0..1 | ||
| MIABIS-COLLECTION-03 | Name | Name of the collection (preferably in English). | Text | 1 | ||
| MIABIS-COLLECTION-04 | URL | Complete http-address for the collection. | Text | 0..1 | ||
| MIABIS-COLLECTION-05 | Contact Information | Contact information for the contact person/person responsible of the collection. | Structured data | Contact Information | 1 | |
| MIABIS-COLLECTION-06 | Description | Description of the collection in English. | Text | Recommendation max. 2000 characters. | 1 | |
| MIABIS-COLLECTION-07 | Sample source | The source from which the samples were collected or isolated. | Enumerated values | Human, Animal, Environment. | 0..1 | |
| MIABIS-COLLECTION-08 | Sex | The sex of the individuals in the collection. | Enumerated values | Male, Female, Unknown, Undifferentiated, Not applicable. | 1..n | |
| MIABIS-COLLECTION-09 | Age Low | Age of youngest sample donor at time of sample donation. | Integer | 0..1 (If applicable) | ||
| MIABIS-COLLECTION-10 | Age High | Age of oldest sample donor at time of sample donation. | Integer | 0..1 (If applicable) | ||
| MIABIS-COLLECTION-11 | Age Low Unit | Unit defining Age Low. | Enumerated values | Years, Months, Weeks, Days, Gestational weeks. | 0..1 (If applicable) | |
| MIABIS-COLLECTION-12 | Age High Unit | Unit defining Age High. | Enumerated values | Years, Months, Weeks, Days, Gestational weeks. | 0..1 (If applicable) | |
| MIABIS-COLLECTION-13 | Dataset type | Types of datasets (groups of related data) obtained or otherwise derived from donors or their specimens. | Enumerated values | Lifestyle dataset, Environmental dataset, Physiological dataset, Biochemical dataset, Clinical dataset, Psychological dataset, Genomic dataset, Proteomic dataset, Metabolomic dataset, Body (Radiological) image, Whole slide image, Photo image, Genealogical records, Other. | 1 | |
| MIABIS-COLLECTION-14 | Sample type | The biospecimen saved from a biological entity for propagation e.g. testing, diagnostics, treatment or research purposes. | Enumerated values | Blood, Buffy coat, Cancer cell lines, Digital sample, DNA, Entire body organ, Faeces, Embryo or fetal tissue, Immortalized cell lines, Isolated microbes, Other body fluid, Plasma, Primary cells, Post-mortem tissue, RNA, Saliva, Serum, Specimen from environment or food, Swab, Tissue (Frozen), Tissue (FFPE), Urine, Other. | 1 | |
| MIABIS-COLLECTION-15 | Storage temperature | The long-term storage temperature at which the sample is stored after preparation, based on SPREC v3. | Enumerated values | RT (Room temperature), 2 °C to 10°C, -18 °C to -35 °C, -60 °C to -85 °C, <-135 °C, Liquid nitrogen vapor-phase, Liquid nitrogen liquid-phase, Other. | 0..n | |
| MIABIS-COLLECTION-16 | Disease | The disease or disease category of main interest in the collection, if any. | Structured data | Can be multiple diseases or disease categories as defined in Disease. | 0..n | |
| MIABIS-COLLECTION-17 | Sample collection setting | The context in which the sample collection was/is conducted. | Enumerated values | Routine health care setting, Clinical trial, Research study, Public health/population based study, Museum and/or archeological collection, Environment, Unknown, Other. | 0..n | |
| MIABIS-COLLECTION-18 | Collection design | The overall design of the collection that explains how the collection was/is built up. | Enumerated values | Case-control, Cross-sectional, Longitudinal cohort, Twin-study, Quality control study, Population-based cohort, Disease-specific cohort, Birth cohort, Microbial collection (if applicable with resistance data), Reference collection, Rare disease collection, Other. | 0..n | |
| MIABIS-COLLECTION-19 | Use & Access conditions | The conditions that may change the availability of the samples/data in the collection. | Enumerated data | Commercial use, Collaboration, Specific research use, Genetic data use, Outside EU access, Xenograft, Other animal work, Other. | 0..n | |
| MIABIS-COLLECTION-20 | Collection status | The state of the collection functions. | Enumerated values | Active, Ended, Other | 0..1 | |
| MIABIS-COLLECTION-21 | Total number of subjects | Total number of subjects included in the collection. | Integer | 0..1 | ||
| MIABIS-COLLECTION-22 | Inclusion criteria | Information on type of parameters that determine which subjects will become collection participants. | Enumerated values | Health status, Hospital patient, Use of medication, Gravidity, Age group, Familial status, Sex, Country of residence, Ethnic origin, Population representative sampling, Lifestyle/Exposure, Other | 0..n | |
| MIABIS-COLLECTION-23 | Publications | List of key publications produced in the collection. | Text | Provide DOI, if possible | 0..n |